Two and one half weeks after my first round of chemo my very thick and shoulder length blond hair started thinning dramatically, oh the things we take for granted. I decided to cut my hair cut short and have my wig styled at the same time, Charles and John at the salon were wonderful with me. I hated having short hair, especially when people would say, “oh, you cut all your hair off” or “I like your new haircut”. I hated it, it made me feel vulnerable, look older and just did not suit me at all.
Anyway, it started to fall out big time, there was so much of it, everywhere! My clothes, my pillow, the house, the store and let’s not forget the shower drain, it was like an infomercial for liquid plumber. I didn’t really tell many people about the experience as it was happening, I don’t know why this is, maybe it was just too traumatic, I’m not entirely sure. I remember crying every night in the shower as I washed more and more of it away it was like a B film horror flick scene. I stepped out of the shower and each time more of my scalp would be revealed. Also, it hurts when your hair is falling out, so I was a bit relieved when finally it all went away and I was left with NOTHING but fine little baby blond hairs. It was horrifying to me yet oddly interesting at the same time, truly to this day I look in the mirror with either a sense of amazement by how different I look or I simply laugh at myself in disbelief.
Enter another angel from Georgetown, Tara Heery, Social Case Worker who cares for everyone she comes in contact with. I have a great affection and appreciation for someone like Tara that give selflessly to others, she’s a wonderful person to know on any day, with or without cancer.
Tara, knowing that I was having a lot, and I mean a lot of trouble with the hair loss and the impact chemotherapy was having on my appearance recommended I attend a program founded by The Cosmetics Toiletry and Fragrance Association Foundation, “Look Good, Feel Better” LGFB. I was a bit reluctant to attend, special interest GROUP meetings did not appeal to me at all. I am not a sit around drink the kool-aid sing kum-bay-yah type. All I could imagine was a bunch of sad depressed women sitting around complaining and feeling sorry for themselves. In the end I decided to go, considering it more an interactive makeup session, my fears of a group session would be minimized. Though the great people at my LGFB do offer a one-on-one session if requested.
There I was with about eight other women participating in the session that day, each in varying stages of their cancer treatment from full blown chemo to diagnosed two days prior, all of the women were at least ten years older than me and they all were fabulous! They were upbeat, fun, and though deeply terrified about their cancer all of them had a sort of kick ass attitude about their disease and how they were going to fight it by not letting it take over everything especially the connection they had with themselves. Therefore, the cancer challenge facing us in the mirror (literally) that day was our appearance; the dark eye circles, the pale skin, the steroid acne, the major obvious NO HAIR, the dry skin, the bloating, the unrecognizable.
Hans a local stylist and regular volunteer to the program gave one of the women, she was bald, a makeover using various wigs and scarves. He also went over the entire technique of makeup application, and gave some good pointers for when eyebrows and eyelashes decide to follow chemo’s command and fall out. With Hans’ lead the other ladies and I performed our makeovers with a wonderful collection of items that were donated.
Wait, I must elaborate here on all the products we were given! I was taken aback a bit by receiving such a generous gift and I was amazed by the array of companies that donated their products to the program, everything a woman would need was packaged neatly by skin tone, from eye liner to moisturizer. There were companies whose products I use everyday, I had no idea they were so generous and I am so grateful!
I do believe that some of the women there that day really did need to know how to apply makeup, with or without cancer, but for those women like me (makeup queens) LGFB solidified my resolve to not lose “ME” through BC. For me the program was not about how to put on makeup, I’d known that for years, though I have a greater appreciation for it now, for me it was about maintaining my dignity, poise, self composure; however you want to describe it. I wanted to be as normal as possible. I needed to keep me, be me. I did not want to invite people into my world by my appearance, I did not want to be felt sorry for, gawked at. I did not want my privacy invaded by unsolicited though well intended curious well wishers.
Cancer treatments are so in your face, literally! Every morning and every night I faced the harsh reality of those treatments, but the time in between with hair and makeup I could be me, I did not have to succumb to my treatment’s merciless evil whims. What are looks after all some might ask? And maybe in the end they’re not so important, but for now as I am a single young woman full of life and energy the way I look says a lot TO ME about the way I FEEL. I don’t want to be taken the wrong way, do I wish I could “be bald be free”, or “bald is beautiful”? Maybe, but I don’t think that suits me. I commend those women that can let it all out, or as I’ve heard described, “wear their cancer badge of courage for all to bear witness to”. Not me. Just like for many women no way would they think about wearing a wig or makeup.
By early September I was getting ready for my 3rd chemo and at this point I was having a love hate relationship with my wig, loved it because it let me lead a “normal” life, hated it for all that it represented, it was just wrong. I have worn a hat every single day since then over my wig. It was too obvious to me that it was a wig, I was paranoid as hell that it would shift and I would like a crazy woman. So now I have about two hundred hats! Speaking of hats, ok great in the day time; winter berets, summer straw hats, and the old faithful baseball caps, but try finding a hat to go with evening attire…a whole new problem emerges. Nonetheless, no one ever knew that it was not my hair, or at least that’s what I thought.
During the first five months of my chemotherapy I continued to work, this was good and bad. Good in that it kept things “normal” and the had the support of my very caring customers. Bad in that it wore me out, my blood counts were very low leaving me susceptible to all sorts of infections, and perhaps I gave people, especially my superiors, the wrong impression. What I mean is that because I was working so much, our store was successful and I didn’t look sick, they didn’t take my illness seriously. This proved to be a great challenge with my employer and I caution everyone that may be facing a similar situation, be sure they get it. My company just did not understand what I was going through and they were not supportive at all. This of course is very hurtful and frustrating.
Finally my last chemo came in January 05, all in all I have to say that my chemotherapy experience was ok, relatively speaking, it certainly could have been worse. Yes, there were terrible, terrible days, days I felt I couldn’t take it anymore, but looking back now I feel grateful that it wasn’t as bad as it could have been. Dr. Liu did a great job working on my medications to ensure I was as comfortable as possible through out my six months of chemo. Having Scott by my side made it more bearable, again he was there for every single chemo and some of those days were eight hours at the hospital.